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Chronic Eileen

Rheumatoid Arthritis Patient Advocate

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COVID-19: Disability advocates plead for support of immunocompromised – CTV News Vancouver

  • by Chronic Eileen
  • Posted on March 12, 2020

I recently had the opportunity to speak with CTV News reporter Penny Daflos on what is important to me as a rheumatoid arthritis patient in the time of covid-19.

Read more on CTV News Vancouver

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Posted in Advocacy, Chronic Illness

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This has been my struggle lately and it's become even more difficult with the covid restrictions. I feel like I waste money booking the gym some days to not be able to go because my health has something pop up. I miss the freedom of exercise when my body felt right, that's so important when living with rheumatoid arthritis. I have two exercise routines, one for the good days and one for the bad days. I prefer the good day work outs where I get a real good sweat out but those haven't been possible as often as they used to be.
Being sassy in the sauna!
Friendly reminder. It's ok to feel how you feel.
I did something really cool the other day! It was a huge honor to be asked to present at the Canadian Arthritis Research Conference #CARC2021 and to get such a response!! I've included a link in my bio to a blog post I created for those that were not able to see my presentation.
Thank you @risingabovera and @creaky_joints for putting together this campaign to create awareness over how #arthritis affects our hands. I have a love and hate relationship with my hands now because of #RheumatoidArthritis and #Osteoarthritis. Sure my hands look pretty but looks are deceiving.
Once a week I feel like I am in a #retrowave music video as I take my @soliusinc #VitaminDLightTherapy. But I also feel a slight bit of mental clarity, increase in energy and mood. I like it too because I feel warm and relaxed, pleasant in the cold winter months with rheumatoid arthritis . However the treatment isn't necessarily about how I feel bit what vitamin d does for the body over all since it has a systematic effect. I decided to take the vitamin d light therapy weekly to also protect myself against the Canadian winters and season for infection. In a few weeks I will be having my blood work done to test my serum levels. After 4 months of weekly treatments during the winter I am excited to see the comparison. Hold tight.

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