These are difficult times, especially those living with autoimmune conditions. I hope you are all staying safe and informed about the precautions we must take to keep ourselves safe. I am currently self isolating at home with my son. We are not having any visitors, no play dates, no play grounds. It’s extremely lonely and scary but we are in this together. Please stay safe.
I am teaming up with a couple organizations to help them navigate the needs of the patients who are at risk. Never has advocacy been so important. Please watch my social media channels on Facebook and Twitter for on going information.
Here is a list of reliable resources for patients during this time.
Covid-19 Global Rheumatology Alliance
The Global Rheumatology Alliance’s mission is to create a secure, de-identified, international case reporting registry and curate and disseminate the outputs from that registry. It is their hope that the information collected will help guide rheumatology clinicians in assessing and treating patients with rheumatologic disease and in evaluating the risk of infection in patients on immunosuppression.
The steering committee is composed of academic and community rheumatologists and a patient representative. The steering committee was formed with the goal of rapidly curating and disseminating accurate, timely, evidence-based information to the community of rheumatology providers and patients.
GHLF’s FREE COVID-19 Support Program for Chronic Disease Patients and Their Families — Enroll Today
This COVID-19 patient support program was brought to you by Global Healthy Living Foundation and its patient community, CreakyJoints. It is a patient support program for people with chronic diseases and their families who are more vulnerable to the dangers of coronavirus. Whether you have an autoimmune condition, cancer, hypertension, HIV/AIDS or any other medical condition, you MUST remain informed about coronavirus and take additional steps to protect your health and the health of your family. That starts with enrolling in this free program.
The coronavirus (COVID-19) pandemic is especially stressful for people with chronic diseases. The Global Healthy Living Foundation (GHLF) has developed a FREE program for patients and their families to access updated information, community support, and other resources tailored specifically to your health and safety.
Join the millions of people who are #HighRiskCovid19 by signing up for the latest information about the virus that is a special threat to you — delivered straight to your inbox.
Arthritis Consumer Experts – Arthritis At Home
American College of Rheumatology
Canadian Arthritis Patient Alliance
British Society of Rheumatology
National Rheumatoid Arthritis Society
The Lancet Coronavirus Updates
International Foundation for Autoimmune & Autoinflammatory Arthritis
Spondylitis Association of America
Thurston Arthritis Research Center
American Autoimmune Related Diseases Association, Inc
Medicine Matters: Rheumatology
American Behcet’s Disease Association