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Chronic Eileen

Rheumatoid Arthritis Patient Advocate

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Category: Creaky Joints

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Keeping My Son Home From School This Fall Is a No-Brainer Choice, Says One Mom with Chronic Illness — But It Still Breaks My Heart – Creaky Joints

  • by Chronic Eileen
  • Posted on August 24, 2020October 18, 2020

‘If my RA has taught me anything, it’s that me must move forward and learn to adapt. Even though it’s painful, I know this is the right choice for me and for Jacob.’

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  • Creaky Joints

The 13 Silver Linings I Found in the Coronavirus Pandemic as Someone with Chronic Illness – Creaky Joints

  • by Chronic Eileen
  • Posted on August 22, 2020August 22, 2020

‘I remind myself—I am not stuck at home. I am *safe* at home.’

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  • Creaky Joints

What Does Rheumatoid Arthritis Really Feel Like? The 10 Descriptions You Won’t Read in an Office Pamphlet – Creaky Joints

  • by Chronic Eileen
  • Posted on August 7, 2020December 3, 2020

Listen to those who walk the arthritic walk and talk the talk as an advocate. No one can tell you better than someone who has a lived experience.

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  • Creaky Joints

How a Sneaky Copper Deficiency Landed Me in the ER – Creaky Joints

  • by Chronic Eileen
  • Posted on July 28, 2020July 28, 2020
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  • Creaky Joints

How I Finally Found Courage in My Rheumatoid Arthritis Diagnosis – Creaky Joints

  • by Chronic Eileen
  • Posted on July 9, 2020July 9, 2020

It takes courage to climb a mountain, even — or especially — when that mountain is invisible.

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  • Chronic Illness

I Am Not a Burden Because of My Chronic Illness (Even Though Dating Makes Me Feel Like I Am) – Creaky Joints

  • by Chronic Eileen
  • Posted on June 24, 2020July 29, 2020

  ‘I am worthy of love — even if someone doesn’t think I am because…

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  • Chronic Illness

The 9 Emotions I Keep Struggling with During the Coronavirus Pandemic (and How I’m Dealing) – Creaky Joints

  • by Chronic Eileen
  • Posted on May 19, 2020October 24, 2020

Learn more about why a rheumatoid arthritis patient is struggling with mental health and what she is doing to manage depression and anxiety.

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  • Chronic Illness

Brain Fog: Why Don’t We Talk More About This Frustrating Symptom of Rheumatoid Arthritis? – Creaky Joints

  • by Chronic Eileen
  • Posted on May 18, 2020July 29, 2020

I personally find that this brain fog can be one of the most difficult —…

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  • Advocacy

‘If I Can Get COVID-19 and Survive, You Can Too’: A Health Care Worker with RheumatoidArthritis Speaks Out – Creaky Joints

  • by Chronic Eileen
  • Posted on April 7, 2020July 29, 2020

Learn more about how a health care worker with rheumatoid arthritis battled coronavirus and is now recovered and feeling OK.

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  • Advocacy

A Thank-You Letter to the True Heroes of the Coronavirus Pandemic, from a Worried Rheumatoid Arthritis Patient – Creaky Joints

  • by Chronic Eileen
  • Posted on March 30, 2020July 29, 2020

Not all heroes wear capes

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Recent Posts

  • Sleep and Exercise with Rheumatoid Arthritis – A Patient Presentation at the 2021 Canadian Arthritis Research Conference
  • I Tried Meal Delivery Kits to Ease My Life With Chronic Illness – Did It Work For Me?
  • Chronic Illness Memes to Giggle Over On The Tough Days
  • Why Exercise Matters With Rheumatoid Arthritis – A Patient Perspective Presentation to Physiotherapy Students
  • 6 Ways the Coronavirus Pandemic Affected Me as Someone with Chronic Illness (Despite Never Having COVID-19) – Creaky Joints

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This has been my struggle lately and it's become even more difficult with the covid restrictions. I feel like I waste money booking the gym some days to not be able to go because my health has something pop up. I miss the freedom of exercise when my body felt right, that's so important when living with rheumatoid arthritis. I have two exercise routines, one for the good days and one for the bad days. I prefer the good day work outs where I get a real good sweat out but those haven't been possible as often as they used to be.
Being sassy in the sauna!
Friendly reminder. It's ok to feel how you feel.
I did something really cool the other day! It was a huge honor to be asked to present at the Canadian Arthritis Research Conference #CARC2021 and to get such a response!! I've included a link in my bio to a blog post I created for those that were not able to see my presentation.
Thank you @risingabovera and @creaky_joints for putting together this campaign to create awareness over how #arthritis affects our hands. I have a love and hate relationship with my hands now because of #RheumatoidArthritis and #Osteoarthritis. Sure my hands look pretty but looks are deceiving.
Once a week I feel like I am in a #retrowave music video as I take my @soliusinc #VitaminDLightTherapy. But I also feel a slight bit of mental clarity, increase in energy and mood. I like it too because I feel warm and relaxed, pleasant in the cold winter months with rheumatoid arthritis . However the treatment isn't necessarily about how I feel bit what vitamin d does for the body over all since it has a systematic effect. I decided to take the vitamin d light therapy weekly to also protect myself against the Canadian winters and season for infection. In a few weeks I will be having my blood work done to test my serum levels. After 4 months of weekly treatments during the winter I am excited to see the comparison. Hold tight.

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