Arthritis Research Saves Lives
Since my diagnosis with rheumatoid arthritis I have had a lot of questions I needed answers for. In order to find those answers about how to live my most fulfilling life with RA I turned to arthritis research and have not been able to look back.
Want to participate in arthritis research? Below are some ways you can get involved. If you follow my social media channels I am often posting about research participation call outs!
Research study participants play a crucial role in arthritis research, and much of the research completed at Arthritis Research Canada is made possible by the generous contribution of time by people living with arthritis. There are many opportunities for those with arthritis to become involved; however, some patients are hesitant because they believe that all research studies are invasive. The truth is that some studies can be as simple as taking a survey, testing an interactive website or having a knee exam. And remember, your privacy and confidentiality are always protected.
Keep track of your symptoms and help advance research. In 2014, CreakyJoints created a Patient-Powered Research Network called ArthritisPower™ with support from the Global Healthy Living Foundation and Patient-Centered Outcomes Research Institute (PCORI).
ArthritisPower is an innovative, nationwide research registry of patients with rheumatoid arthritis and spondyloarthritis (e.g., psoriatic arthritis, ankylosing spondylitis). The goal of the registry is to make patient care and management more effective by understanding and analyzing the patient’s condition on a day-to-day basis.