Research Invovlement

Since 2018, I have actively participated as a patient partner in arthritis research. It all began when I decided to join the Arthritis Research Canada patient advisory board (APAB), where I had the chance to collaborate with other passionate individuals. Being a part of APAB not only allowed me to stay updated on the latest advancements in arthritis research but also gave me a platform to voice my opinions and contribute to decision-making processes.
Taking my involvement in arthritis research to the next level, from 2020 to 2023, I had the incredible opportunity to serve as a Patient Engagement Research Ambassador with the Canadian Institutes of Health Research – Institute of Musculoskeletal Health and Arthritis. This role empowered me to actively work with a diverse and dynamic team, as we dedicated ourselves to developing modules aimed at effectively engaging patients in health research.
During this experience, I played an integral role in brainstorming, designing, and refining these modules, ensuring they were holistic and comprehensive. We focused on strategies to empower patients to actively participate in research initiatives, considering their unique perspectives, needs, and concerns. Being a Patient Engagement Research Ambassador allowed me to contribute not only on a national level but also granted me the opportunity to collaborate internationally.
Overall, my journey as a patient partner in arthritis research has been incredibly fulfilling. It has not only expanded my knowledge and understanding but has also allowed me to play an active role in shaping and improving the field. I am eager to continue making a difference and contributing to the advancement of arthritis research both locally and globally.
- Canadian Institutes of Health Research -Celebrating Champions – How Social Media Influencers Can Promote Patient Engagement in Health Research
- Center For Health Evaluation and Outcome Sciences – Re-dawn of the digital age: Integrating technology & healthcare
- Center For Heath Evaluation and Outcome Sciences– Gaining PRECISION on chronic inflammatory diseases through patient voices
- Arthritis Broadcast Network – Chronic Eileen Interviews at #CRArthritis2021
- Canadian Journal of Occupational Therapy– Advancing Patient and Community Engagement in Occupational Therapy Research
- BMC Rheumatology – Insights on mental health when living with rheumatoid arthritis: a descriptive qualitative study of threads on the Reddit website
- American College of Rheumatology Meeting Abstracts – Strength Training for People with Rheumatoid Arthritis: Barriers, Facilitators, and Tailoring Considerations
- Health Expectations – Experiences of self-care during the COVID-19 pandemic among individuals with rheumatoid arthritis: A qualitative study
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Wiley Online Library– The role of occupational therapy for the self-management of rheumatoid arthritis: A protocol for a mixed methods systematic review
- St. Paul’s Hospital Foundation Promise Magazine – A bridge to the future
- Arthritis Research & Care – Rapid Review of Medication Taking (Adherence) Among Patients With Rheumatic Diseases During the COVID-19 Pandemic
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2022 American College of Rheumatology Guideline for Exercise, Rehabilitation, Diet, and Additional Integrative Interventions for Rheumatoid Arthritis
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Center for Health Evaluation and Outcome Sciences – Research partners: Providing essential puzzle pieces
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Wiley Online Library – Impact of Loneliness and Social Isolation on Mental Health Outcomes Among Individuals With Rheumatic Diseases During the COVID-19 Pandemic
- CIHR-IMHA – Engaging Patient Partners as Peer Reviewers of Grant Applications: Tips for Everyone Involved
- Arthritis and Rheumatology – 2022 American College of Rheumatology Guideline for Exercise, Rehabilitation, Diet, and Additional Integrative Interventions for Rheumatoid Arthritis
- Arthritis Research & Care – 2022 American College of Rheumatology Guideline for Exercise, Rehabilitation, Diet, and Additional Integrative Interventions for Rheumatoid Arthritis