Research Invovlement

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Since 2018, I have actively participated as a patient partner in arthritis research. It all began when I decided to join the Arthritis Research Canada patient advisory board (APAB), where I had the chance to collaborate with other passionate individuals. Being a part of APAB not only allowed me to stay updated on the latest advancements in arthritis research but also gave me a platform to voice my opinions and contribute to decision-making processes.

 

Taking my involvement in arthritis research to the next level, from 2020 to 2023, I had the incredible opportunity to serve as a Patient Engagement Research Ambassador with the Canadian Institutes of Health Research – Institute of Musculoskeletal Health and Arthritis. This role empowered me to actively work with a diverse and dynamic team, as we dedicated ourselves to developing modules aimed at effectively engaging patients in health research.

 

During this experience, I played an integral role in brainstorming, designing, and refining these modules, ensuring they were holistic and comprehensive. We focused on strategies to empower patients to actively participate in research initiatives, considering their unique perspectives, needs, and concerns. Being a Patient Engagement Research Ambassador allowed me to contribute not only on a national level but also granted me the opportunity to collaborate internationally.

 

Overall, my journey as a patient partner in arthritis research has been incredibly fulfilling. It has not only expanded my knowledge and understanding but has also allowed me to play an active role in shaping and improving the field. I am eager to continue making a difference and contributing to the advancement of arthritis research both locally and globally.