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Chronic Eileen

Rheumatoid Arthritis Patient Advocate

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Chronic Eileen Blog

Presentation – From Devastated to Patient Leader – How to Kick Ass and Take Names As a Patient Advocate – HealtheVoices23

September 2023 I presented at my favorite conference of the year – HealtheVoices! This is what I had to say.

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How Inflation Is Making Life with Rheumatoid Arthritis Even Harder – Creaky Joints

“Living with a chronic illness can be incredibly expensive. Add in the rising costs of inflation and life with rheumatoid arthritis becomes even harder.”

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How My Cats Provide Me Relief from Rheumatoid Arthritis – Creaky Joints

“My cats always provide comfort. They seem to sense when I need a cuddle or even just a comforting meow, making the challenges of RA more bearable.”

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Navigating RA in Summer: Handling Heat and Wildfires – Creaky Joints

“Navigating RA challenges during the summer requires adaptability, but I still find joy in the season.”

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Product Review – KaLaya Natural Pain Relief

I was recently sent several natural pain relief products by KaLaya,, find out my opinion on them in this review.

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Product Review – HeatPod Sauna Blanket for Rheumatoid Arthritis

The HeatPod is an infrared sauna blanket that delivers full-body infrared heat therapy for improved recovery, better heart and systemic health, and stress relief. How is it for Rheumatoid Arthritis?

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10 Rheumatoid Arthritis Blogs You Should Follow – Health Central

Feeling alone in your RA experience? Tap into this online community of chronic folks going through it, too.

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Confronting the Challenges of Loneliness and Rheumatoid Arthritis – Creaky Joints

“Out of all the changes brought on by chronic illness, the loneliness and social isolation are the most painful….There are moments when I feel surrounded by an overwhelming darkness, but I remind myself that these moments will pass, and I have the strength to endure them.”

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2022 American College of Rheumatology Guideline for Exercise, Rehabilitation, Diet, and Additional Integrative Interventions for Rheumatoid Arthritis

The American College of Rheumatology has released guidelines for exercise, rehabilitation, diet, and additional integrative interventions for rheumatoid arthritis. Learn how I was involved!

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Want To Know More About Patient Engagement in Research? These Modules Are For You!

The CIHR’s Institute of Musculoskeletal Health and Arthritis (IMHA) has developed online, self-directed, and free modules for patient-partner engagement in research. One of these modules is called “A How-to Guide for Patient Engagement in Research”.

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Join Me at PXP – For Patients, By Patients – Partnering to Make Research Stronger – A Conference

The PxP initiative is a hub for patient engagement in health research brought to you For Patients, By Patients. PxP is designed for patient partners and other individuals with lived experience.

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Chasing Relief: Navigating My Rheumatoid Arthritis Medication Journey – CreakyJoints

“The day I was told I’d need to rely on medication for the rest of my life, I was filled with fear. Not only was I grappling with my diagnosis, but also with the reality of taking medication every day.”

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  • Research
  • Blog
  • Creaky Joints Essays
  • Publications
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  • Media & Interviews
  • Campaigns
  • Recognition
  • Contact Me
  • Chronic Eileen
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  • Product Reviews
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