Patient Leaders Talk Over RA
I am so excited to share with you what we have done for #TalkOverRA 2023! Here is the Patient Leaders Talk Over RA Video.
In this video you will find a video of myself, Lene Andersen, Michael Kuluva, and Julia McNally discussing various topics around remission with rheumatoid arthritis. We also go over the #TalkOverRA guide.
What is Talk Over RA
TalkOverRA is a platform that aims to empower people living with rheumatoid arthritis to advocate for themselves and their healthcare needs. It provides resources, community support, and tools to help individuals communicate effectively with their doctors and healthcare providers. The campaign emphasizes the importance of self-advocacy and provides tips for assertive communication and asking the right questions.
Meet The Patient Leaders of Talk Over RA
Lene Andersen
Lene – pronounced Lena – is an award-winning writer, health and disability advocate and photographer living in Toronto, Canada. Born and raised in Denmark, Lene has had juvenile arthritis since she was four years old and has used a power wheelchair since her teens. She has a Masters Degree in Social Work and is the Community Leader of HealthCentral RA site. Lene shares her home with a cat and too many books.
Lene’s 2023 Talk Over RA Content
- Tired Of Being Tired: 10 Pro Tips For Coping With Rheumatoid Arthritis Fatigue
- When RA Comorbidities Get In The Way
Follow Lene On Social Media
Julia McNally
Julia is a certified yoga instructor, chair yoga instructor and trained Yoga For Arthritis teacher living with rheumatoid arthritis. She is also the host of the TV series YogArthritis on MAtv Montreal. Julia is a patient advocate for herself and others, she is open about her experience living with arthritis and how drastically her life has changed. Her mission is to provide accessible yoga videos for people living with all types of arthritis, build a supportive community, and help her students LIVE WELL.
Julia’s Talk Over RA 2023 content
- Yoga Therapy Sequence For Anxiety and RA – Talk Over RA 2023
- Yoga Therapy and RA – Talk Over RA 2023
- Chair Yoga Therapy For Depression – Talk Over RA 2023
- Mental Health & RA – Talk Over RA 2023
Follow Julia On Social Media
Michael Kuluva
Michael David Kuluva is an American now living in Canada Fashion designer and founder of the New York fashion week label Tumbler and Tipsy and his brand MICHAEL KULUVA. Michael lives with rheumatoid arthritis and uses his platform to raise awareness about the condition.
Michael’s 2023 Talk Over RA Content
Follow Michael Kuluva on Social Media
Watch The Patient Discussion Video
What We Go Over
- What remission means to us
- Barriers we have faced achieving remission (comorbidities, income, timing of diagnosis, year diagnosed)
- What we want other patients to know about RA and remission
- How to talk to your rheumatologist about your rheumatoid arthritis
- The biggest lessons we learned about remission and our disease
- The Talk Over RA guide and how to use it
Download The Talk Over RA Discussion Guide
TalkOverRA is a platform that aims to empower people living with rheumatoid arthritis to advocate for themselves and their healthcare needs. It provides resources, community support, and tools to help individuals communicate effectively with their doctors and healthcare providers. The campaign emphasizes the importance of self-advocacy and provides tips for assertive communication and asking the right questions.
My 2023 Talk Over RA Content
- Patient Leaders Talk Over RA Video
- Canada – Dr. Cheryl Barnabe
- United States – Dr. Jen Barton
- Brazil – Dr. André Luiz Luquini Pereira
- UK – Dr. Ayman Askari
- Talk Over RA 2020 – 2023 Recap
- Talk Over RA – Important Questions To Ask Your Rheumatoid Arthritis Care Team
- Talk Over RA – Understanding Obesity and Remission with Rheumatoid Arthritis
- Talk Over RA – What I Learned About Remission and Rheumatoid Arthritis At The 2023 American College of Rheumatology Conference
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